Here's a picture of Sierra Rose from Saturday, September 22, 2007.
Saturday, September 29, 2007
Update Friday, September 28, 2007
CURRENT STATUS
To bring you up to date regarding the last post, doctors administered an EEG on Sierra Rose yesterday to measure the electrical activity of her brain. After viewing the results today, they determined that her movements were not due to seizures. This is good, but unfortunately the cause of her movements is something called myoclonus. At this point, we don't know how serious the myoclonus will be.
Currently, Sierra is receiving Keppra to treat her seizures. This medication should reduce the seizures while allowing her to wake up gradually (as the sedating drugs leave her system).
IT'S NOT ALL BAD
Despite this depressing news about myoclonus, there was some good news yesterday and today.
-Sierra Rose is off her blood pressure medicine
-She is breathing on her own much more regularly (especially when we interact with her)
-She has been able to digest a little of R's milk every 4 hours (fed through a tube)
-Her catheter has been removed
-The best one yet: R and J were able to hold her for the first time yesterday!
PRAYER REQUESTS
-Pray that Sierra Rose will not have additional seizures
-Pray that Sierra Rose will begin to wake up so that the doctors can examine her more thoroughly
-Pray that the myoclonus will be mild
HOW TO HELP
Many of you have asked how you can help. What we desire most of all is your intercessory prayer. If you are doing this, we are overjoyed. Honestly, this is the most important thing you can do to help.
For all those of you who have provided food or visited, thank you very much. Your food and fellowship have been enjoyed.
Here's something that you can do that will really be appreciated: Consider writing a note of blessing to Sierra Rose. (You can mail it to the K family.) We will collect and compile these into a keepsake for Sierra Rose. We believe that she will have a powerful testimony for the Lord as she grows older, even as she has already begun to have.
To bring you up to date regarding the last post, doctors administered an EEG on Sierra Rose yesterday to measure the electrical activity of her brain. After viewing the results today, they determined that her movements were not due to seizures. This is good, but unfortunately the cause of her movements is something called myoclonus. At this point, we don't know how serious the myoclonus will be.
Currently, Sierra is receiving Keppra to treat her seizures. This medication should reduce the seizures while allowing her to wake up gradually (as the sedating drugs leave her system).
IT'S NOT ALL BAD
Despite this depressing news about myoclonus, there was some good news yesterday and today.
-Sierra Rose is off her blood pressure medicine
-She is breathing on her own much more regularly (especially when we interact with her)
-She has been able to digest a little of R's milk every 4 hours (fed through a tube)
-Her catheter has been removed
-The best one yet: R and J were able to hold her for the first time yesterday!
PRAYER REQUESTS
-Pray that Sierra Rose will not have additional seizures
-Pray that Sierra Rose will begin to wake up so that the doctors can examine her more thoroughly
-Pray that the myoclonus will be mild
HOW TO HELP
Many of you have asked how you can help. What we desire most of all is your intercessory prayer. If you are doing this, we are overjoyed. Honestly, this is the most important thing you can do to help.
For all those of you who have provided food or visited, thank you very much. Your food and fellowship have been enjoyed.
Here's something that you can do that will really be appreciated: Consider writing a note of blessing to Sierra Rose. (You can mail it to the K family.) We will collect and compile these into a keepsake for Sierra Rose. We believe that she will have a powerful testimony for the Lord as she grows older, even as she has already begun to have.
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