Here's a picture of Sierra Rose from Saturday, September 22, 2007.
Saturday, September 29, 2007
Update Friday, September 28, 2007
CURRENT STATUS
To bring you up to date regarding the last post, doctors administered an EEG on Sierra Rose yesterday to measure the electrical activity of her brain. After viewing the results today, they determined that her movements were not due to seizures. This is good, but unfortunately the cause of her movements is something called myoclonus. At this point, we don't know how serious the myoclonus will be.
Currently, Sierra is receiving Keppra to treat her seizures. This medication should reduce the seizures while allowing her to wake up gradually (as the sedating drugs leave her system).
IT'S NOT ALL BAD
Despite this depressing news about myoclonus, there was some good news yesterday and today.
-Sierra Rose is off her blood pressure medicine
-She is breathing on her own much more regularly (especially when we interact with her)
-She has been able to digest a little of R's milk every 4 hours (fed through a tube)
-Her catheter has been removed
-The best one yet: R and J were able to hold her for the first time yesterday!
PRAYER REQUESTS
-Pray that Sierra Rose will not have additional seizures
-Pray that Sierra Rose will begin to wake up so that the doctors can examine her more thoroughly
-Pray that the myoclonus will be mild
HOW TO HELP
Many of you have asked how you can help. What we desire most of all is your intercessory prayer. If you are doing this, we are overjoyed. Honestly, this is the most important thing you can do to help.
For all those of you who have provided food or visited, thank you very much. Your food and fellowship have been enjoyed.
Here's something that you can do that will really be appreciated: Consider writing a note of blessing to Sierra Rose. (You can mail it to the K family.) We will collect and compile these into a keepsake for Sierra Rose. We believe that she will have a powerful testimony for the Lord as she grows older, even as she has already begun to have.
To bring you up to date regarding the last post, doctors administered an EEG on Sierra Rose yesterday to measure the electrical activity of her brain. After viewing the results today, they determined that her movements were not due to seizures. This is good, but unfortunately the cause of her movements is something called myoclonus. At this point, we don't know how serious the myoclonus will be.
Currently, Sierra is receiving Keppra to treat her seizures. This medication should reduce the seizures while allowing her to wake up gradually (as the sedating drugs leave her system).
IT'S NOT ALL BAD
Despite this depressing news about myoclonus, there was some good news yesterday and today.
-Sierra Rose is off her blood pressure medicine
-She is breathing on her own much more regularly (especially when we interact with her)
-She has been able to digest a little of R's milk every 4 hours (fed through a tube)
-Her catheter has been removed
-The best one yet: R and J were able to hold her for the first time yesterday!
PRAYER REQUESTS
-Pray that Sierra Rose will not have additional seizures
-Pray that Sierra Rose will begin to wake up so that the doctors can examine her more thoroughly
-Pray that the myoclonus will be mild
HOW TO HELP
Many of you have asked how you can help. What we desire most of all is your intercessory prayer. If you are doing this, we are overjoyed. Honestly, this is the most important thing you can do to help.
For all those of you who have provided food or visited, thank you very much. Your food and fellowship have been enjoyed.
Here's something that you can do that will really be appreciated: Consider writing a note of blessing to Sierra Rose. (You can mail it to the K family.) We will collect and compile these into a keepsake for Sierra Rose. We believe that she will have a powerful testimony for the Lord as she grows older, even as she has already begun to have.
Thursday, September 27, 2007
Update Thursday, September 27, 2007
My mother called at about 2:30. She said that Sierra Rose has been having more seizures today. The doctors aren't sure if these are being caused by the change in seizure medications or by something else. Sierra has 25 monitors attached to her head and a video camera recording her movements. Doctors want to check whether or not there is a correlation between the brain activity and her physical movements. They should have some information around 6 p. m. today.
Everyone has heavy hearts right now. Please pray especially for Sierra Rose's peace and safety. Also pray for peace for R and everyone else.
Everyone has heavy hearts right now. Please pray especially for Sierra Rose's peace and safety. Also pray for peace for R and everyone else.
Wednesday, September 26, 2007
Sierra Rose Update September 24-26, 2007
Dear Friends,
Thank you for your continued prayers for Sierra Rose and the entire family. God's grace has been poured over everyone involved.
On Monday, Sierra Rose began having seizures again. One of her seizure medicines had been reduced and she reacted. Her doctor changed her medication and loaded her with it. As far as I know, she hasn't had any more seizures since then.
Sierra Rose's doctor also gave her additional medications that should help her begin waking up gradually (she has been asleep since her birth day last week) but should also help her to be calm.
J's mother and brother arrived Tuesday after a 30-hour drive from their home. It will be a big blessing having them present during this time.
Sierra Rose has moved her arms and legs a few times. At one point, when the window blind was raised, she closed her eyelids tighter. This appears to be an indication of ability to perceive light and dark. Obviously, though, we're praying for much keener vision.
Today R said that Sierra's breathing rate had been low (around 18 breaths per minute, I think). When Rosetta was with her, though, she stopped relying on the ventilator so heavily and began breathing more on her own (almost 50 breaths per minute, I think).
Another praise is that Sierra's platelet level increased. It had been about 90 but then it went up to 250. This is good news!
Overall this is still a grave situation. R and J know that they will be on a roller-coaster ride--lots of ups and downs. Please continue praying for everyone, but especially for little Sierra Rose.
--MK for the Family
Thank you for your continued prayers for Sierra Rose and the entire family. God's grace has been poured over everyone involved.
On Monday, Sierra Rose began having seizures again. One of her seizure medicines had been reduced and she reacted. Her doctor changed her medication and loaded her with it. As far as I know, she hasn't had any more seizures since then.
Sierra Rose's doctor also gave her additional medications that should help her begin waking up gradually (she has been asleep since her birth day last week) but should also help her to be calm.
J's mother and brother arrived Tuesday after a 30-hour drive from their home. It will be a big blessing having them present during this time.
Sierra Rose has moved her arms and legs a few times. At one point, when the window blind was raised, she closed her eyelids tighter. This appears to be an indication of ability to perceive light and dark. Obviously, though, we're praying for much keener vision.
Today R said that Sierra's breathing rate had been low (around 18 breaths per minute, I think). When Rosetta was with her, though, she stopped relying on the ventilator so heavily and began breathing more on her own (almost 50 breaths per minute, I think).
Another praise is that Sierra's platelet level increased. It had been about 90 but then it went up to 250. This is good news!
Overall this is still a grave situation. R and J know that they will be on a roller-coaster ride--lots of ups and downs. Please continue praying for everyone, but especially for little Sierra Rose.
--MK for the Family
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